Down's Syndrome: Children Growing UpCambridge University Press, 24 nov 1995 - 202 pagine The most common, most easily recognized and probably the most researched single condition causing learning disability is Down's syndrome. Dr. Carr has followed the lives of a population-based cohort of Down's syndrome subjects from birth to early adulthood. This volume, based on extensive interviews and questionnaires that focus on fundamental issues of development and upbringing, details particularly the development of study groups between the ages 11 and 21 with a longitudinal perspective reference to earlier years as appropriate. Dr. Carr investigates a wide range of factors from behavior, discipline and independence to effects on the family and the provision of help from services. The collection of this unique data spanning the first twenty-one years of life enables Dr. Carr to offer discussion and advice that will be of international relevance and an invaluable reference for clinical psychologists, social workers and all others concerned with the care, health and well-being of Down's syndrome individuals and their families. |
Sommario
Downs syndrome implications of the diagnosis | 1 |
Incidence prevalence and life expectancy | 2 |
Characteristics | 4 |
Personality | 6 |
Health | 8 |
The effects of ageing and Alzheimers disease | 9 |
Effect on families | 11 |
Populations and procedures | 15 |
Interests and activities | 93 |
Outings | 96 |
Holidays | 98 |
Daytime occupation | 99 |
Friendships | 102 |
Sex education and interest | 108 |
Longitudinal aspects | 110 |
Discussion | 115 |
Changes in the populations | 16 |
Living situation | 18 |
Testing procedures | 19 |
The nature of the study | 20 |
Symbols and shorthand | 21 |
The developmental study | 23 |
Intellectual achievement | 31 |
Group differences in ability and achievement | 36 |
Discussion | 37 |
Selfcare and independence | 44 |
Selfhelp skills | 47 |
Coping with puberty | 51 |
Correlations | 53 |
Discussion | 55 |
Behaviour and discipline | 59 |
Longitudinal aspects | 69 |
Discussion | 76 |
Focusing on the individual | 84 |
Staying at home and going out | 90 |
Effect on the families | 119 |
Effect on brothers and sisters | 120 |
Effect on the mothers | 127 |
Longitudinal aspects | 137 |
Discussion | 144 |
Help from services | 150 |
Services at age 21 | 154 |
Allowances at age 21 | 160 |
Discussion | 162 |
Summary and conclusions | 166 |
Behaviour | 168 |
Living and life styles | 170 |
The effect on the families | 171 |
The role of services | 174 |
Looking to the future | 176 |
181 | |
197 | |
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Parole e frasi comuni
11 year old 15 months Alzheimer's disease arithmetic behaviour problems BPVS Buckley & Sacks Byrne Carr child with Down's children with Down's class mothers compared control group controls percentages cooperativeness Correlations Cunningham 1987 day centres difference difficulties disciplinary methods Down's syn Down's syndrome child Down's syndrome children Down's syndrome group Down's syndrome percentages Down's syndrome young drome early effect factors families figures findings four friends Gath girls half handicapped health visitor higher Holmes hospital interview Journal of Mental learning disabilities less living Malaise scores manage mean IQ MENCAP Mental Retardation Newson non-disabled children older parents population present study profoundly disabled young range rated reading ages relationships reported Scale seen self-help self-injurious self-injurious behaviour severely disabled Shepperdson 1992 sibs skills smacking small number social class spina bifida Surrey syndrome and controls Table tests toileting two-thirds women WPPSI young person young woman
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